KASPAR LABS GENE THERAPY FOR SPINAL MUSCULAR ATROPHY IS……..

FDA APPROVED.....we are happy to be able to share this news with you. 1,631 days ago our Sophia was diagnosed with SMA Type 1.......That same day in the living room of our small home in Wantagh, NY The Sophia's Cure Foundation was born. This has been a long, hard road; and yet one of the most rewarding journeys of our lives. We never gave up hope, we never stopped believing.  Thousands and thousands of you have stood by us, with your bake sales, collection cans, Marathon runs, Walks, Duck Races, … [Read more...]

Daily News Article

Read the full article here. … [Read more...]

Wantagh -Seaford Patch supports Sophia’s cure

http://wantagh.patch.com/articles/steamfitters-uniting-to-find-cure-for-wantagh-girl-battling-spinal-muscular-atrophy … [Read more...]

Thank you BW Unlimited

A few months back we were entered into a contest that BW Unlimited was having on their Facebook page. Because of the hard work of the SMA Community, our friends, family and faithful followers we took first place!!!! Your relentless voting everyday paid off and we cannot thank you all enough!!! Because we won 1st place we were able to choose from BW Unlimited's large selection of autographed items. After a lot of thought and feedback from the community we chose the autograhed Paul Mccartney … [Read more...]

Sophia’s Cure featured on FIOS 1 “Heroes on Long Island”

Heroes on Long Island features Sophia's Cure Foundation … [Read more...]

SMA Awareness night with the NY Islanders and Robbie Rosen

American Idol Blog American Idol Now The examiner Yahoo News ESPN NY Newsday … [Read more...]

January 18, 2011 – Prendiz Family’s Fundraising SMA Gala in LA, California

Please dont forget to check out this amazing event, or consider being a sponsor, The Prendiz family is working on a fundraising charity Gala to help Cure SMA. Please click here to learn more about The Gala and the Prendiz Family and their journey with SMA. When we stand together and share information, our voices will be heard loud and clear. Miracles do Happen, Lets make one!!!!!! Featured images of Hannah and her mommy, Jessica. For more info about Hannah or the Gala, please … [Read more...]

Long Island Fortune 52 Honors Catherine!

I want to first start this post by asking for prayers for Sophia's friend Mary Nelson. Mary has Type 1 SMA just like Sophia and is currently in the Picu having seizures and is unresponsive. Please keep Mary in your thoughts and prayers. Two weeks ago I was on the construction site and received a phone call from a number I did not recognize. Usually I would just ignore the call and continue on with work. On this day for some reason I decided to answer. It was a woman by the name of Beverly … [Read more...]

Start saving lives of children affected by Spinal Muscular Atrophy

This project finished in the top 2 in July, 2010. Sophia's Cure Foundation was awarded $250K! View our Pepsi Refresh Project page. There is true hope for SMA. The NIH has listed SMA as the Neurological disease closest to a cure, and as a gateway to curing other diseases. The research is so close that it could be in time to save the lives of many children. Unfortunately it is known as an Orphane disease and does not recieve enough money from companies. It would not be profitable for many … [Read more...]

Sophia’s Cure Unites Bellmore Community

By Christine Sampson Gaynor Family's foundation  raises over $200,000 for Spinal Muscular Atrophy Sophia Gaynor celebrated her birthday on Feb. 27 with not one but two birthday cakes, gifts from friends and loved ones and a special birthday outfit complete with fluffy tutu. It was her first birthday, no doubt a monumental day in the life of any child and proud parent. But for Sophia, turning 1 represented something much more. Sophia is afflicted with a degenerative neurological disease … [Read more...]

© 2011 The Sophia's Cure Foundation. All Rights Reserved. The Sophia's Cure Foundation is a non-profit 501(c)(3) public charity. Site by modSpot