Thank you BW Unlimited

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A few months back we were entered into a contest that BW Unlimited was having on their Facebook page. Because of the hard work of the SMA Community, our friends, family and faithful followers we took first place!!!! Your relentless voting everyday paid off and we cannot thank you all enough!!! Because we won 1st place we were able to choose from BW Unlimited's large selection of autographed items. After a lot of thought and feedback from the community we chose the autograhed Paul Mccartney … [Read more...]

Sophia’s Cure featured on FIOS 1 “Heroes on Long Island”

Heroes on Long Island features Sophia's Cure Foundation … [Read more...]

SMA Awareness night with the NY Islanders and Robbie Rosen

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American Idol Blog American Idol Now The examiner Yahoo News ESPN NY Newsday … [Read more...]

January 18, 2011 – Prendiz Family’s Fundraising SMA Gala in LA, California

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Please dont forget to check out this amazing event, or consider being a sponsor, The Prendiz family is working on a fundraising charity Gala to help Cure SMA. Please click here to learn more about The Gala and the Prendiz Family and their journey with SMA. When we stand together and share information, our voices will be heard loud and clear. Miracles do Happen, Lets make one!!!!!! Featured images of Hannah and her mommy, Jessica. For more info about Hannah or the Gala, please … [Read more...]

Long Island Fortune 52 Honors Catherine!

Catherine & Sophia

I want to first start this post by asking for prayers for Sophia's friend Mary Nelson. Mary has Type 1 SMA just like Sophia and is currently in the Picu having seizures and is unresponsive. Please keep Mary in your thoughts and prayers. Two weeks ago I was on the construction site and received a phone call from a number I did not recognize. Usually I would just ignore the call and continue on with work. On this day for some reason I decided to answer. It was a woman by the name of Beverly … [Read more...]

Start saving lives of children affected by Spinal Muscular Atrophy

Pepsi Refresh Project - $250G Awarded to Sophia's Cure Foundation

This project finished in the top 2 in July, 2010. Sophia's Cure Foundation was awarded $250K! View our Pepsi Refresh Project page. There is true hope for SMA. The NIH has listed SMA as the Neurological disease closest to a cure, and as a gateway to curing other diseases. The research is so close that it could be in time to save the lives of many children. Unfortunately it is known as an Orphane disease and does not recieve enough money from companies. It would not be profitable for many … [Read more...]

Sophia’s Cure Unites Bellmore Community

Sophia's Cure Unites Bellmore Community

By Christine Sampson Gaynor Family's foundation  raises over $200,000 for Spinal Muscular Atrophy Sophia Gaynor celebrated her birthday on Feb. 27 with not one but two birthday cakes, gifts from friends and loved ones and a special birthday outfit complete with fluffy tutu. It was her first birthday, no doubt a monumental day in the life of any child and proud parent. But for Sophia, turning 1 represented something much more. Sophia is afflicted with a degenerative neurological … [Read more...]

Sophia in Long Island Press

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Divide And Conquer Long Island Families Turn To Controversial Stem Cell Research To Help Cure Their ChildrenWritten by Jaclyn Gallucci on Aug 6th, 2009 and filed under Current Issue, Featured, News, Every weekend, 8-year-old Brianna Bermudez of Bay Shore sits behind a bright yellow table with a bucket of lemonade and a red vase on the corner of West Leila and Manhattan Avenues in South Tampa with her grandmother. Her roadside profits, nearing $4,000, would have sent most kids into early … [Read more...]

NEWSDAY: Wantagh couple looks for cure for child’s disease

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BY JIM MERRITT Special to Newsday Vincent Gaynor of Wantagh believes that, in most respects, his is an "an average American family." Gaynor, a 1994 Herricks High School graduate, met the former Catherine Kamieniak, a 1996 Lindenhurst High School graduate, at a party in Manhattan in 2004, and they married in September 2006. They planned to have children right away. Catherine gave birth to Sophia, their first child, on Feb. 27 of this year. Two weeks after that, they noticed that their … [Read more...]

Fox and Friends

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Thank you to Fox and Friends for having us on their show this morning, the donations have been pouring in as well as tons of supportive emails from people all over the country!!! Watch the latest video at video.foxnews.com http://video.foxnews.com/v/3934338/sophias-cure/ … [Read more...]

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© 2011 The Sophia's Cure Foundation. All Rights Reserved. The Sophia's Cure Foundation is a non-profit 501(c)(3) public charity.