Heroes on Long Island features Sophia's Cure Foundation … [Read more...]

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This project finished in the top 2 in July, 2010. Sophia's Cure Foundation was awarded $250K! View our Pepsi Refresh Project page. There is true hope for SMA. The NIH has listed SMA as the Neurological disease closest to a cure, and as a gateway to curing other diseases. The research is so close that it could be in time to save the lives of many children. Unfortunately it is known as an Orphane disease and does not recieve enough money from companies. It would not be profitable for many … [Read more...]

By Christine Sampson Gaynor Family's foundation  raises over $200,000 for Spinal Muscular Atrophy Sophia Gaynor celebrated her birthday on Feb. 27 with not one but two birthday cakes, gifts from friends and loved ones and a special birthday outfit complete with fluffy tutu. It was her first birthday, no doubt a monumental day in the life of any child and proud parent. But for Sophia, turning 1 represented something much more. Sophia is afflicted with a degenerative neurological … [Read more...]

Divide And Conquer Long Island Families Turn To Controversial Stem Cell Research To Help Cure Their ChildrenWritten by Jaclyn Gallucci on Aug 6th, 2009 and filed under Current Issue, Featured, News, Every weekend, 8-year-old Brianna Bermudez of Bay Shore sits behind a bright yellow table with a bucket of lemonade and a red vase on the corner of West Leila and Manhattan Avenues in South Tampa with her grandmother. Her roadside profits, nearing $4,000, would have sent most kids into early … [Read more...]

BY JIM MERRITT Special to Newsday Vincent Gaynor of Wantagh believes that, in most respects, his is an "an average American family." Gaynor, a 1994 Herricks High School graduate, met the former Catherine Kamieniak, a 1996 Lindenhurst High School graduate, at a party in Manhattan in 2004, and they married in September 2006. They planned to have children right away. Catherine gave birth to Sophia, their first child, on Feb. 27 of this year. Two weeks after that, they noticed that their … [Read more...]

Thank you to Fox and Friends for having us on their show this morning, the donations have been pouring in as well as tons of supportive emails from people all over the country!!! Watch the latest video at video.foxnews.com http://video.foxnews.com/v/3934338/sophias-cure/ … [Read more...]