Bowling for a CURE!!!! June 5, 2011

We are so honored to be one of the charities chosen to benefit from this FUN, FUN event....Our Friends at Stop & Shop are putting together an awesome event benefitting The Sophia's Cure Foundation and Kaylee's Heart Foundation. Come on out Sunday June 5th from 2-5pm (registration begins at 1:30pm) to Farmingdale Lanes. $25 per person (children under 12 $20) Free Rental Shoes, Pizza and Soda, 3 Hours of Bowling Fun and Excitement. There will be great prizes offered through a variety of … [Read more...]

Avery’s Race to Cure SMA …July 23 2011

This event is fast approaching, The Pitzen Family started Avery's Race to Cure SMA in 2010 and was a huge success, this event raised $20,000 for SMA!!! And the Pitzen's are at it again, The 2011 event will be in Lancaster Wisconsin-Grant County Fairgrounds on July 23, The Pitzen's will also be hosting a SMA Family supply swap/meet and greet the night before "Any SMA families that are planning on coming to Avery's Race to CURE SMA on July 23,Or that are gonna be in Wisconsin to see Dr. Schroth … [Read more...]

Come on out and ZUMBA AWAY SMA!! A benefit to help Cure Spinal Muscular Atrophy.

Come on out Sunday May 1, 2011 at 10:30am to support The Sophia's Cure Foundation and Zumba Away SMA!!! Joanne Craven Rossiter was approached by a family friend over a year ago to put on this amazing event, and we are so happy she has jumped on board in our fight to help cure SMA. Joanne is considered one of the #1 Zumba instructors on Long Island and  has brought together her favorite colleagues to help fight SMA!! Thank you so much Joanne and BetUCanDance for putting on this incredible event. … [Read more...]

“Hope for Charleston” Spinal Muscular Atrophy Research Fundraiser and Bake Sale

Check out this amazing event Saturday, February 19 · 12:00pm - 5:00pm at Flying Colors Comics and Other Cool Stuff 2980 Treat Blvd Concord, CA...yummy treats, healthy options, and some comic book giveaways too! This event is being given in honor of Charleston (Cash) Goeppart. Cash is the son to Concord natives Ashley and Cameron, two amazing SMA Parents who are not only devoted to Cash but to helping in the fight to CURE SMA!!!!! Please consider attending and supporting this awesome SMA Family, … [Read more...]

March 26, 2011 – SMA Awareness night with The NY Islanders

Come on out to this incredible event benefiting Spinal Muscular Atrophy. The New York Islanders are teaming up with The Sophia's Cure Foundation to raise awareness and funding for Spinal Muscular Atrophy. A portion of every ticket sale will be donated to The Sophia's Cure Foundation. Anyone who purchases tickets for this game through The Sophia's Cure Foundation will be entitled to an exclusive open skate session on Nassau Coliseum Ice for the entire family following the game, bring your own … [Read more...]

July 23, 2011 – 2nd Annual Avery’s Race to Cure SMA

The Wonderful Pitzen Family is at it again! The 2nd Annual Avery’s Race to CURE SMA is set for Saturday July 23rd, 2011. This year it will be held at the Lancaster fairgrounds. In AIR CONDITIONING! The walk and rubber duck race will still be outside though. The walk will loop down through the park to the creek for the duck race then continue back to the fairgrounds for the auctions,food,games and fun! Hope to see you there! Last Years event raised a whopping $20,000! Way to go Avery! … [Read more...]

January 18, 2011 – Prendiz Family’s Fundraising SMA Gala in LA, California

Please dont forget to check out this amazing event, or consider being a sponsor, The Prendiz family is working on a fundraising charity Gala to help Cure SMA. Please click here to learn more about The Gala and the Prendiz Family and their journey with SMA. When we stand together and share information, our voices will be heard loud and clear. Miracles do Happen, Lets make one!!!!!! Featured images of Hannah and her mommy, Jessica. For more info about Hannah or the Gala, please … [Read more...]

December 12, 2010 – Running for Getty Owl

We are also so Happy to be teaming up with Rici Reid, an amazing mom who read about another SMA Kid Baby Getty. Rici has decided to run a half marathon in honor of sweet Getty and help raise research dollars for Sophia's Cure Foundation, please consider sponsoring her here. … [Read more...]

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