August is SMA AWARENESS month, and Sophia's Cure along with so many other SMA organizations works so hard to teach more and more people about Spinal Muscular Atrophy (SMA),  we have always believed we all can accomplish more by working together, "A dream you dream alone is only a dream. A dream you dream together is reality."  So we want to make sure all our supporters know about the amazing events going on this month and beyond that support SMA. These events spread from the East coast to the … [Read more...]

Local Volunteer Firefighters located in the Reno Nevada area, are participating together to hold the “Hope for Charleston” 2nd Annual Spaghetti Feed 2011. Saturday, August 20 from 3pm to 9pm we will host a Spaghetti dinner, live music, games and face painting, bounce houses, dunk tank, raffle/silent auction and a static display of fire trucks along with the members. Adults are $10, kids $5 or a family pack (2 adults 2 kids $25) New to our event this year will be a Luminary Bag Ceremony … [Read more...]

SCF is so excited about the upcoming Golf Event hosted by GMM Consulting, Cuhaci and Peterson, Kimley-Horn and Associates Inc and Terracon.  We cannot thank them enough for supporting SMA. Come on out and join us Friday Oct 21 at Huntington Hills Golf Club in Lakeland FL. Tons of sponsorship opportunities.... For more information or to register online click here. Hope to see you all there!!!! … [Read more...]

We are so honored to have received the following news, "Iceworks Skating Academy proudly presents its 5th Annual Spring Fling Ice - Hooray For Hollywood!  Each year, the Iceworks Skating Academy puts on 2 skating recitals - a Holiday Ice Show and a Spring Fling.  And for each show, we donate all proceeds to a charity that hits close to home.  This year all the proceeds from the Spring Fling will be donated to Sophia's Cure.  The show will be on Saturday, June 4th at 7:30pm, held at … [Read more...]

We are all so excited for this next ZUMBA EVENT!!!!!!!! Dont miss out, register today.... Hosted by Terry Gaynor in Honor of Sophia Barbara Gaynor diagnosed with SMA Type 1 Zumba instruction by Gilly Lugo, Daisy Bugarin Zumba Education Specialist from Los Angeles CA, Yudelka Canela, Lupe Calderon founders and owners of Brooklyns finest zumba studios ; Y & L fitness and DJ by Dino Georgakapolus 11:30 .....Location St. Sebastian Parish Center - 2nd Floor Gym 39-60 57th … [Read more...]

At The Zumba Away SMA event I had the pleasure to meet Dana, and was so grateful when she contacted me to offer this amazing event. Dana is the owner of Mattson Photographers. She is putting together such a unique fun event on Friday July 15. She is offering the whole day of photo mini sessions ($150 a session) with all proceeds going to Sophia's Cure!!!! UNBELIEVABLE :) .....She is having the event at sunken meadow park and in honor of Sophia's Love of Pink it will be a whole PINKALICIOUS … [Read more...]

We are so honored to be one of the charities chosen to benefit from this FUN, FUN event....Our Friends at Stop & Shop are putting together an awesome event benefitting The Sophia's Cure Foundation and Kaylee's Heart Foundation. Come on out Sunday June 5th from 2-5pm (registration begins at 1:30pm) to Farmingdale Lanes. $25 per person (children under 12 $20) Free Rental Shoes, Pizza and Soda, 3 Hours of Bowling Fun and Excitement. There will be great prizes offered through a variety of … [Read more...]

This event is fast approaching, The Pitzen Family started Avery's Race to Cure SMA in 2010 and was a huge success, this event raised $20,000 for SMA!!! And the Pitzen's are at it again, The 2011 event will be in Lancaster Wisconsin-Grant County Fairgrounds on July 23, The Pitzen's will also be hosting a SMA Family supply swap/meet and greet the night before "Any SMA families that are planning on coming to Avery's Race to CURE SMA on July 23,Or that are gonna be in Wisconsin to see Dr. Schroth … [Read more...]

Come on out Sunday May 1, 2011 at 10:30am to support The Sophia's Cure Foundation and Zumba Away SMA!!! Joanne Craven Rossiter was approached by a family friend over a year ago to put on this amazing event, and we are so happy she has jumped on board in our fight to help cure SMA. Joanne is considered one of the #1 Zumba instructors on Long Island and  has brought together her favorite colleagues to help fight SMA!! Thank you so much Joanne and BetUCanDance for putting on this incredible event. … [Read more...]

Check out this amazing event Saturday, February 19 · 12:00pm - 5:00pm at Flying Colors Comics and Other Cool Stuff 2980 Treat Blvd Concord, CA...yummy treats, healthy options, and some comic book giveaways too! This event is being given in honor of Charleston (Cash) Goeppart. Cash is the son to Concord natives Ashley and Cameron, two amazing SMA Parents who are not only devoted to Cash but to helping in the fight to CURE SMA!!!!! Please consider attending and supporting this awesome SMA … [Read more...]