A Day For Avery…….

Three short months ago, the Skeeters were blessed with the opportunity to meet baby Avery Lynn Canahuati, who at the time was 5 months old.  Avery, who was born on 11-11-11 had been diagnosed with an incurable genetic disease and her parents were informed that she would not only lose her ability to walk, stand, sit, eat, breathe and even swallow, but that she would pass away within the next 18 months. Avery had Spinal Muscular Atrophy, or SMA for short. When diagnosed, Avery’s parents Mike … [Read more...]

A Night For a Cure

August is SMA AWARENESS MONTH.....Please join us for a cocktail fundraising party on Thursday August 16, from 7-11pm. Help us end SMA!!!! Click here for more details and registration info!!!!  EVENT … [Read more...]

Golf for a Cure in honor of Nathan Banjany!!

SCF is so excited about the 2nd annual Golf Event in honor of Nathan Banjany, hosted by GMM Consulting, Cuhaci and Peterson, Kimley-Horn and Associates Inc and Terracon.  We cannot thank them enough for supporting SMA. Come on out and join us Friday Oct 19 at Huntington Hills Golf Club in Lakeland FL. Tons of sponsorship opportunities…. For more information or to register online click here. Hope to see you all there!!!! … [Read more...]

Avery’s Bucket List continues to touch the life of everyone around the WORLD

Avery's voice continues to be heard outside of our disease community. She has connected with people and has motivated them to make a lasting change in her memory. One of those people has approached us anonymously. This donor heard Avery's voice and wanted to make a BIG difference. Initially this anonymous donor wanted to donate $11,111.11 to honor Avery's birthdate of 11/11/11. Upon reading of  the donor willing to match every dollar that comes in Avery’s name, this generous person got all fired … [Read more...]

August is SMA AWARENESS MONTH……..

August is SMA AWARENESS month, and Sophia's Cure along with so many other SMA organizations works so hard to teach more and more people about Spinal Muscular Atrophy (SMA),  we have always believed we all can accomplish more by working together, "A dream you dream alone is only a dream. A dream you dream together is reality."  So we want to make sure all our supporters know about the amazing events going on this month and beyond that support SMA. These events spread from the East coast to the … [Read more...]

Aug 20, 2011 Hope For Charleston Spaghetti Fundraiser

Local Volunteer Firefighters located in the Reno Nevada area, are participating together to hold the “Hope for Charleston” 2nd Annual Spaghetti Feed 2011. Saturday, August 20 from 3pm to 9pm we will host a Spaghetti dinner, live music, games and face painting, bounce houses, dunk tank, raffle/silent auction and a static display of fire trucks along with the members. Adults are $10, kids $5 or a family pack (2 adults 2 kids $25) New to our event this year will be a Luminary Bag Ceremony and … [Read more...]

Oct 21, 2011 Golf Event benefitting SCF in honor of Nathan Banjany…..

SCF is so excited about the upcoming Golf Event hosted by GMM Consulting, Cuhaci and Peterson, Kimley-Horn and Associates Inc and Terracon.  We cannot thank them enough for supporting SMA. Come on out and join us Friday Oct 21 at Huntington Hills Golf Club in Lakeland FL. Tons of sponsorship opportunities.... For more information or to register online click here. Hope to see you all there!!!! … [Read more...]

June 4th Come on out to IceWorks and support SCF

We are so honored to have received the following news, "Iceworks Skating Academy proudly presents its 5th Annual Spring Fling Ice - Hooray For Hollywood!  Each year, the Iceworks Skating Academy puts on 2 skating recitals - a Holiday Ice Show and a Spring Fling.  And for each show, we donate all proceeds to a charity that hits close to home.  This year all the proceeds from the Spring Fling will be donated to Sophia's Cure.  The show will be on Saturday, June 4th at 7:30pm, held at Islanders … [Read more...]

ZUMBATHON JUNE 11 to help Cure SMA

We are all so excited for this next ZUMBA EVENT!!!!!!!! Dont miss out, register today.... Hosted by Terry Gaynor in Honor of Sophia Barbara Gaynor diagnosed with SMA Type 1 Zumba instruction by Gilly Lugo, Daisy Bugarin Zumba Education Specialist from Los Angeles CA, Yudelka Canela, Lupe Calderon founders and owners of Brooklyns finest zumba studios ; Y & L fitness and DJ by Dino Georgakapolus 11:30 .....Location St. Sebastian Parish Center - 2nd Floor Gym 39-60 57th … [Read more...]

Pinkalicious mini photo sessions to benefit SCF on July 15!!!

At The Zumba Away SMA event I had the pleasure to meet Dana, and was so grateful when she contacted me to offer this amazing event. Dana is the owner of Mattson Photographers. She is putting together such a unique fun event on Friday July 15. She is offering the whole day of photo mini sessions ($150 a session) with all proceeds going to Sophia's Cure!!!! UNBELIEVABLE :) .....She is having the event at sunken meadow park and in honor of Sophia's Love of Pink it will be a whole PINKALICIOUS … [Read more...]

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