“Momma Love” by Ali Smith

I am sitting here on my couch my makeup has smeared, my eyes are swollen, there is a slight lump in my throat, Ali Smith has just left my home....she came to spend the morning with Sophia and I to take pictures and interview me for a book she is working on called MOMMA LOVE.....this was more to me than a photo shoot, Long after the pictures were taken... Ali and I quietly went into Sophia's room and sat on the bed like "girlfriends" ready for a chat session......she quietly placed her recorder … [Read more...]

January 18, 2011 – Prendiz Family’s Fundraising SMA Gala in LA, California

Please dont forget to check out this amazing event, or consider being a sponsor, The Prendiz family is working on a fundraising charity Gala to help Cure SMA. Please click here to learn more about The Gala and the Prendiz Family and their journey with SMA. When we stand together and share information, our voices will be heard loud and clear. Miracles do Happen, Lets make one!!!!!! Featured images of Hannah and her mommy, Jessica. For more info about Hannah or the Gala, please … [Read more...]

What’s Sophia been up to

Making Christmas cookies....thats right, I made Christmas cookies with my little girl. I know it doesnt sound like alot, but ever since having Sophia I had all these dreams of doing so many things with her, and when SMA entered our lives I felt all my dreams were stollen.....well everyday Sophia has taught me that she can do anything.....and Vinny and I learn everyday how to adapt the world for Sophia. I loved every second of it, watching her watch all the ingredients go into the bowl, pushing … [Read more...]

Christmas magic

I love love the holidays, ever since I was a little girl I loved every part about it. My whole life I could not wait to have children so I could teach them all the magic about Christmas. My mother was a wonderful "teacher" she always made the holidays beautiful, and let me tell you, you don't need money to do so......we were so poor growing up, I remember one year we couldn't even afford a tree, but that didn't stop my mother she took all the christmas cards that people sent us and taped them on … [Read more...]

Happy Holiday’s

Its the Holiday season and we are super excited to celebrate Jackson's first christmas and even more thrilled to celebrate Sophia's second!!!! So much has been going on lately I think we have been feeling a bit overwhelmed and certain events in the past few weeks have left us extremely stressed out!!!!! But we will get through.......we have been working so hard non stop and we just need a little break, I was so happy last saturday to meet up with another amazing SMA Mom, It is so comforting to … [Read more...]

Amazing Night at The Calhoun High School Talent Show!

The other night we received a phone call from Lauren Rosen. Lauren Rosen is the mom of Robbie Rosen. Many if not all of our followers know about Robbie. The entire Rosen family has become very near and dear to our family. Mrs. Rosen and I were talking on the phone and said she had a surprise... A surprise?????????? What more could this family have done I wondered. They have already done so much!!!! I am forever grateful for their efforts and their friendship. Well Mrs. Rosen says" There is a … [Read more...]

Prendiz Family’s Charity Fundraising SMA Gala in California!

Since we have launched our SMA Kids campaign we have literally been overwhelmed with so many upcoming fundraisers that are currently in the works. It has been amazing to see how many families believe in our mission and the momentum is spreading. It would be easy to focus on the past but we prefer to focus on the future! And the future looks bright! We have been approached by at least 5 separate families who want to fundraise in honor of their children all from the Sunny state of California! One … [Read more...]

Long Island Fortune 52 Honors Catherine!

I want to first start this post by asking for prayers for Sophia's friend Mary Nelson. Mary has Type 1 SMA just like Sophia and is currently in the Picu having seizures and is unresponsive. Please keep Mary in your thoughts and prayers. Two weeks ago I was on the construction site and received a phone call from a number I did not recognize. Usually I would just ignore the call and continue on with work. On this day for some reason I decided to answer. It was a woman by the name of Beverly … [Read more...]

SMA Parents

I said it once I will say it again, I hate SMA, I hate what it does to my daughter, but I love Sophia with all my heart, and the SMA Parents and families I have met along this journey are some of the most courageous, understanding, patient and kind people I have ever met. I love every single person in my SMA Family and I am proud to be taking this journey with you all... Today I was having a blah day, its rainy here in NY which doesnt help my yucky mood, but surpisingly I got a knock at the … [Read more...]

Dr. Schroth visits Sophia…in NY

What an amazing Sunday we had today.....Vinny has been working on getting The amazing Dr. Schroth to come to our area to speak to families since last April. Dr. Schroth happened to be attending a conference at Columbia Hospital in NYC this weekend and arranged to come to our home on Sunday.....(How cool is she) when we heard this we immediately wanted other local families to benefit from her awesomeness and opened our home up to whomever was interested, we were so happy and honored to have the … [Read more...]

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