We will make it through together

I heard the beep of a call waiting ¬†and without checking to see who was calling I picked it up. Things have been…….well a little hectic to say the least. The constant communications with ongoing ¬†fundraisers, Sophia’s upcoming monumental milestone, assisting newly diagnosed families, work, and of course making time for my wife and two beautiful children has kept me extremely busy. At times it seems a little overwhelming………but in such a good way. It turns out it was a person who is equally as busy as I…..it was Lauren Rosen, Robbie’s mom.

We proceeded to catch up on things and about halfway through our conversation Lauren had informed me that it was the anniversary of her fathers passing. Usually the Rosen family spends this day traveling to the cemetery to visit Grandpa. The weather here in NY has been a bit like the North Pole…..where snow accumulations have been measured in feet rather than inches. The weather has made their usual visit to see grandpa almost impossible. Robbie has really wanted to come see Sophia for her birthday . Lauren explained to me she was upset she could not go to see her dad but knowing her dad he would understand. Life is about family and if they could not make it to the cemetery her dad would be happy that they would be spending the day with people they considered family. I was moved beyond words……

It is so amazing to see where we are today……we met for the first time before Sophia was even a year old, the beginning of her journey with Spinal Muscular Atrophy. A strong bond was forged the first time we met, a bond that will last a lifetime. There has never been a doubt in my mind, Robbie would call me with ideas on how he could help Sophia and SMA. Using his talents at singing to raise awareness and funds for this disease, even performing in a talent show that benefitted The Sophia’s Cure Foundation. I have always been a firm believer of actions speak louder than words and Robbie and the entire Rosen family have always gone above and beyond for our family. Robbie arrived with a birthday cake for Sophia with 6 words written on top…6 words that meant so much……..WE WILL MAKE IT THROUGH TOGETHER!

Thank you Robbie for taking time out of your super busy schedule to come and visit Sophia for her upcoming second birthday (Feb 27). We were so happy that our families could share this incredible milestone with each other. On behalf of Sophia, The Gaynor family and the entire Spinal Muscular Atrophy community we want to wish you the best of luck. We will all be pulling for you every step of the way!


  1. That is wonderful and beautiful!

  2. That is SOOOOOOO awesome!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

  3. Wow!! What I said I on fb I will repeat… I was literally in tears!! Robbie Rosen-what an awesome guy you are!! That cake was so sweet and how special that you took time to bring it to your friend a sweet little girl on her second birthday! I want you to know that our family has been watching American Idol every season and you were one of the best we have heard during try outs!! I know the entire SMA Community will be backing you in addition to the millions of votes your already going to receive!! So best of luck in Hollywood week! And Yay for Sophia!! Your birthday is almost here!!

  4. Wow, this is really cool.
    Robbie, your talents are going to take you soooo far in American Idol and beyond, but it seems that you are already a winner. What a great person!!! Life is about relationships and it is amazing to see you take the time for Sophia. You’ve got our vote!!!

  5. Brenda Barberena says:

    Such a lovely, caring, big hearted young man Robbie is <3 Im sure Sophia was excited to see him again and felt the love and commitement Robbie has for her and SMA. All the SMA families are so humbled by Robbies passion and we stand behind him with encouragement and support! Yes Robbie, we are pulling for you every step of the way! And when you make it to the finals, I and a few other SMA families will be in the audiance rooting you on!

  6. Terry Gaynor says:

    I justed wanted to thank Robbie and his family for all that they have done for my niece!! I am glad that you got to spend the day together and I hope to meet you as well one day! You are truly special people and this will never be forgotten! We are all pulling for you on American Idol Robbie and I know that your talent will speak for it’s self and you WILL be in the top 10!! :)

  7. What a wonderful treat! Thank you all for all you do to work toward an end to SMA. Hugs to you all and smoochies from Miss Getty! Hoot hoot!

  8. Teri Taylor says:

    Wow – what a great family Robbie must have, for him to care like he does about Sophia. Thanks for all the pictures and sharing the day with us.

  9. Christine Hicks says:

    Thank you Robbie for caring for my wonderful family. I know it is hard not to when you meet
    them and see and hear how courageous they are. You are an amazing young man and we
    are thrilled to be rooting for you on Idol. I and most of my friends and family have never voted
    for the show but I can promise you right now that we will be this time and making sure
    everyone we know gets the vote out as well. God bless and GOOD LUCK!!!!

  10. Michelle O'Dwyer says:

    Oh wow! Sophia looks so thrilled to meet her heart-throb, a real life celebrity. Together Sophia and Robbie will change the world!

  11. Tammy Duke says:

    So awesome! Robbie just proves there are great young people still out there and I am very excited to support his journey on A.I.! Way to go Robbie! And Sophia is as cute as ever!!

  12. Jennifer Calafiore says:

    This is so great! Robbie, you are definitely one of a kind. Thank you for caring. You’ve got our votes out here in California!

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