I heard the beep of a call waiting and without checking to see who was calling I picked it up. Things have been…….well a little hectic to say the least. The constant communications with ongoing fundraisers, Sophia’s upcoming monumental milestone, assisting newly diagnosed families, work, and of course making time for my wife and two beautiful children has kept me extremely busy. At times it seems a little overwhelming………but in such a good way. It turns out it was a person who is equally as busy as I…..it was Lauren Rosen, Robbie’s mom.
We proceeded to catch up on things and about halfway through our conversation Lauren had informed me that it was the anniversary of her fathers passing. Usually the Rosen family spends this day traveling to the cemetery to visit Grandpa. The weather here in NY has been a bit like the North Pole…..where snow accumulations have been measured in feet rather than inches. The weather has made their usual visit to see grandpa almost impossible. Robbie has really wanted to come see Sophia for her birthday . Lauren explained to me she was upset she could not go to see her dad but knowing her dad he would understand. Life is about family and if they could not make it to the cemetery her dad would be happy that they would be spending the day with people they considered family. I was moved beyond words……
It is so amazing to see where we are today……we met for the first time before Sophia was even a year old, the beginning of her journey with Spinal Muscular Atrophy. A strong bond was forged the first time we met, a bond that will last a lifetime. There has never been a doubt in my mind, Robbie would call me with ideas on how he could help Sophia and SMA. Using his talents at singing to raise awareness and funds for this disease, even performing in a talent show that benefitted The Sophia’s Cure Foundation. I have always been a firm believer of actions speak louder than words and Robbie and the entire Rosen family have always gone above and beyond for our family. Robbie arrived with a birthday cake for Sophia with 6 words written on top…6 words that meant so much……..WE WILL MAKE IT THROUGH TOGETHER!
Thank you Robbie for taking time out of your super busy schedule to come and visit Sophia for her upcoming second birthday (Feb 27). We were so happy that our families could share this incredible milestone with each other. On behalf of Sophia, The Gaynor family and the entire Spinal Muscular Atrophy community we want to wish you the best of luck. We will all be pulling for you every step of the way!