We received a beautiful card from Marisa Conte. Marisa is friends of Coby Quinn Kulis’s family. Coby was a beautiful little boy who lost his battle to SMA on February 27, 2011. The same day our daughter Sophia turned two…… Lori and Dave are one of the bravest people we know, they spent every second of every day they had with Coby loving him, making him smile, and making beautiful memories that they will cherish forever. Ever since the day Coby flew to heaven they have spent every second of every day working towards keeping Coby’s memory alive, raising awareness for SMA, and inspiring others to do the same. It is very clear they are doing just that…..in the card Marisa sent was checks totaling over $4,500 and in her own words :
This money is in honor of Coby Quinn Kulis, a brave Superman that touched my heart in ways I didnt know were possible.
Thank you Marisa for all your amazing work and for believing in our mission to end SMA!!!!