Sophia’s Surgery

Sophia had her feeding tube surgery this last tuesday, everything went very well….I was so proud of her, she is my little superstar. Vinny and I stayed with her 24/7 and never left her side….She was so proud and was smiling at all the nurses!!! Last night was our first night home, we were nervous at first but she seems to be tolerating her feeds well…we just need to be careful with her for the next 3 weeks until her g-tube is converted to J-tube….it is very hard because we cant really hold her, because she will start coughing and we dont want her to choke….even though she has the g-tube her belly is still very cute!!!!! We are still working very hard with fundraising to reach our goal and to get this clinical trial going!!!!!! Still fighting for Sophia !!!!!!!!!!

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