The Cure SMA New York Gala was a huge success!!! Not only did we receive a surprise check from OdysseyRe for $50,000 but more importantly we brought together so many SMA families for a fun filled night. I am so proud of Kiley and Dylans sweet dreams foundation and Sophias Cure for pulling off such an amazing event.
We were so honored that Rania Nasis came all the way from UC Irvine to speak about the Stem Cell program they are developing for SMA, and even more proud of my dear friend Dorothy Shuler for winning the Dora B. Martin Courage award, she is such an inspiration to me and my family and to so many in the SMA community, Her strength is incomparable and her courage is immeasurable!!!!