KASPAR LABS GENE THERAPY FOR SPINAL MUSCULAR ATROPHY IS……..

FDA APPROVED…..we are happy to be able to share this news with you. 1,631 days ago our Sophia was diagnosed with SMA Type 1…….That same day in the living room of our small home in Wantagh, NY The Sophia’s Cure Foundation was born. This has been a long, hard road; and yet one of the most rewarding journeys of our lives. We never gave up hope, we never stopped believing. ┬áThousands and thousands of you have stood by us, with your bake sales, collection cans, Marathon runs, Walks, Duck Races, Golf Outings, Zumba events, Spaghetti dinners, Cupcakes for Sophia’s Cure.. and so on and so on. Every bit of it mattered and helped to get us to this point in time…..Thank you from the bottom of our hearts. You have helped to give Hope where there was none; thank you to Dr. Brian Kaspar for not giving up on our SMA kids, thank you Brian for all your hard work, your teams dedication and your amazing research.

A Message from Nationwide Children’s Hospital

A message from Sophia

About Catherine Gaynor

Mom to beautiful Sophia.... SMA Type 1

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