In Memory of Sophie Kathleen TerHorst

We received the following letter the other day…..though Sophie was only here for a short while, she made a difference and inspired all around her….

Dear Vincent

Some very dear friends of my wife and mine recently lost their daughter to SMA. Her name was Sophie Kathleen TerHorst. She was a beautiful little girl who brought tons of joy to the world in her short nine months with her family and friends.

Sophie’s fight with SMA shed light on the character of her parents, Mike and Liz, too. They were determined to give their daughter  the highest quality  of life while alive and handled this terribly tragic circumstance heroically. Organizations like yours helped Mike and Liz make the most of the short time they had with Sophie.

Because the TerHorst’s are such good friends and my wife and I were so impressed with their handling of their daughter’s condition we offered to make a donation of $2,500 to the organization of their choosing on Sophie’s behalf through The Lutsey Family Foundation.

Mike and Liz decided to donate the funds to your organization! On behalf of Sophie kathleen TerHorst, please accept the enclosed check of $2,500 for The Sophia’s Cure Foundation.


Andrew Lutsey

We are so grateful and humbled by the generous gesture from baby Sophie’s family, all funds will go to Dr. Kaspar’s Gene Therapy program. Another tiny hand making a big difference to end SMA!!!!!

About Catherine Gaynor

Mom to beautiful Sophia.... SMA Type 1

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