Holiday Season

Holiday season

I have been feeling a little down lately, not sure if it has to do with Sophia turning gray before my eyes and de-sating the last few days, I guess it probably does….

The reality is the disease is progressing and I can’t do anything about it and it breaks my heart…I would give up anything to cure her and i hate that I can’t control this…

I remember last Christmas I was about 8 months pregnant with Sophia and I sat in our living room and kept thinking that this Christmas my little girl would be crawling around the tree…

Don’t get me wrong, I am so grateful Sophia is with me and her smile brings me everlasting joy …but sometimes I get down about the simple things she cannot do…

I thank God for everyday she is with us, and pray for a cure soon, I just want everyone to not let the simple things bother them and to realize how lucky they are to have a happy and healthy family, please don’t ever take that for granted, everyday i am making memories with my Sophia and storing them deep in my heart, not knowing if and when it will be our last….Please this Holiday season pray for a cure for this disease, I know that is all I want…

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