We are entering an exciting era for SMA…..if you have not done so already, please make sure your SMA patient is registered with the International SMA Patient Registry. You can register online, but you will need to sign some consent forms and mail back. I know it can be confusing, but I just called their 1-800 number to make sure Sophia was registered properly and in 30 seconds they were able to tell me yes!!! I urge all families to do this today!!!
May 23, 2011 by Leave a Comment