Charlottesville VA resident runs for Spinal Muscular Atrophy

I have known Joe Rice and the “Rice Family” for over 13 years now, they are more than just dear friends to me but they are my “second family” , they have always treated me like one of their own and when I introduced Vinny to them they immediately embraced him the same way!!! I consider Joe to be one of my best friends and when I called to tell him that Sophia was diagnosed with Spinal Muscular Atrophy (SMA) he was heartbroken, he immediately told us to set up a cause on Facebook about Sophia’s Cure to get the word out, he walked us through the whole process and….well… Sophia’s Cure was “born”. Joe has always had a love for running and has been a runner for…well we will just say a LONG TIME :) …..Joe reached out to me a few months ago and told me he wanted to run the Charlottesville Marathon in honor of Sophia and SMA, we were overjoyed and so thankful, this means more SMA AWARENESS being spread, but he didn’t stop there…Joe raised over $1,000 for his run for SMA Research!!!! Did I also mention Joe was running on an injured leg!!! Unbelievable :) He also wanted to represent all SMA children (or as many as he could) and plastered himself with pictures of our sma kids all over himself for his run!!! Thank you so much Joe for caring about our sma kids and about curing SMA, You are and DID make a difference!!!!!

About Catherine Gaynor

Mom to beautiful Sophia.... SMA Type 1


  1. Teri Taylor says:

    What a nice guy. Thank you for helping!!!!

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