Archives for September 2013

KASPAR LABS GENE THERAPY FOR SPINAL MUSCULAR ATROPHY IS……..

FDA APPROVED.....we are happy to be able to share this news with you. 1,631 days ago our Sophia was diagnosed with SMA Type 1.......That same day in the living room of our small home in Wantagh, NY The Sophia's Cure Foundation was born. This has been a long, hard road; and yet one of the most rewarding journeys of our lives. We never gave up hope, we never stopped believing. ┬áThousands and thousands of you have stood by us, with your bake sales, collection cans, Marathon runs, Walks, Duck Races, … [Read more...]

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