Archives for August 2012

Because Research Matters………..

So what's next you guys?............. As soon as we wrapped up funding on the Gene Therapy Program that was the first question asked by so many of our supporters. The day after we received many phone calls, emails and instant messages asking us where we go from here. We cannot wait to share our vision for The Sophia's Cure Foundation and how we can further the Spinal Muscular Atrophy research community..but first............. We are so excited that SCF has wrapped up such a long and … [Read more...]

Wantagh -Seaford Patch supports Sophia’s cure

http://wantagh.patch.com/articles/steamfitters-uniting-to-find-cure-for-wantagh-girl-battling-spinal-muscular-atrophy … [Read more...]

A Day For Avery…….

Three short months ago, the Skeeters were blessed with the opportunity to meet baby Avery Lynn Canahuati, who at the time was 5 months old.  Avery, who was born on 11-11-11 had been diagnosed with an incurable genetic disease and her parents were informed that she would not only lose her ability to walk, stand, sit, eat, breathe and even swallow, but that she would pass away within the next 18 months. Avery had Spinal Muscular Atrophy, or SMA for short. When diagnosed, Avery’s parents Mike … [Read more...]

Rebuilding…………..

Life seems to always present parallels. The world will never forget 911.......A day when countless innocent souls were attacked by a hatred that seems unfathomable. The World Trade Center took many years to build.........men and women joined together to create what would one day become  the symbol of American prosperity. It was no easy task........but thousands of hard working union men and women each played a role and worked towards a common goal.......Every day these hard working tradesmen … [Read more...]

A Night For a Cure

August is SMA AWARENESS MONTH.....Please join us for a cocktail fundraising party on Thursday August 16, from 7-11pm. Help us end SMA!!!! Click here for more details and registration info!!!!  EVENT … [Read more...]

© 2011 The Sophia's Cure Foundation. All Rights Reserved. The Sophia's Cure Foundation is a non-profit 501(c)(3) public charity. Site by modSpot