Archives for January 2012


I remember when Sophia was first diagnosed and Vinny and I started meeting other SMA families online ...we would look at all the photos of the beautiful children. I will never forget when we first came across Aiden's photos......his big beautiful smile was so infectious it just made you want to smile. It was hard to look away!!!!!! You could see the happiness radiate from him, you could just tell all the love and happiness his mommy and daddy brought him just poured out from him!!!! We were … [Read more...]

In Memory of Sophie Kathleen TerHorst

We received the following letter the other day.....though Sophie was only here for a short while, she made a difference and inspired all around her.... Dear Vincent Some very dear friends of my wife and mine recently lost their daughter to SMA. Her name was Sophie Kathleen TerHorst. She was a beautiful little girl who brought tons of joy to the world in her short nine months with her family and friends. Sophie's fight with SMA shed light on the character of her parents, Mike and Liz, too. … [Read more...]

How do you measure a year?….

I would like to start this post by thanking everyone who believed in our family, all of you who believed in The Sophia's Cure Foundation and who have believed in the programs we have funded. 2011 was such an amazing year for our organization..............but in all honesty, I was looking past 2011 all year long because I knew what was in store for our children and family members who have been touched personally by Spinal Muscular Atrophy. To be quite frank.......I have been looking past this … [Read more...]

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