Archives for July 2011

Ohio….Friends, Families and a Researchers Round Table

We had been planning our cross-country trip for quite some time. Carefully reviewing every detail leading up to our departure date last wednesday. We were positive everything was under control........but like an episode of Big Brother and the shows mantra "Expect the Unexpected", we were in for a surprise! As Catherine was packing the van she closed the front passenger door and became startled. The rear passenger window shattered into a million pieces..............This was the largest window in … [Read more...]

Another awesome giveaway!

We are so happy to announce another spectacular giveaway! So many families have joined together on so many campaigns that they believe in. The Get every SMA KID an IPAD campaign just keeps rolling! Our dear friends Sandy, Matt, Emily, Cashel and Allie are on a mission! The Gardner/Barber family chipped in last time to help raise enough money for our last Ipad giveaway........and they didn't stop there. Sandy recently used her Birthday wish on Facebook to raise enough money for another IPAD. … [Read more...]

Aug 20, 2011 Hope For Charleston Spaghetti Fundraiser

Local Volunteer Firefighters located in the Reno Nevada area, are participating together to hold the “Hope for Charleston” 2nd Annual Spaghetti Feed 2011. Saturday, August 20 from 3pm to 9pm we will host a Spaghetti dinner, live music, games and face painting, bounce houses, dunk tank, raffle/silent auction and a static display of fire trucks along with the members. Adults are $10, kids $5 or a family pack (2 adults 2 kids $25) New to our event this year will be a Luminary Bag Ceremony and … [Read more...]

Fourth of July family fun….

We have been so busy lately gearing up for our upcoming road trip....Sophia is recovering wonderfully. It has been 1 month from her surgery and it really has become much easier, the first few weeks were tough, I dont want to lie, but she is settling in now and everything seems to have healed. The most important part is that Sophia is much more happier, she can see everything clearly and she is much more comfortable. We couldn't be happier with our decision to Trach Sophia, for her, this is a … [Read more...]

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