Archives for February 2011

Fortune 52 Honoree dinner

Last Monday I attended the dinner Honoring myself and 10 other women who have done exceptional work in their community. Every story I heard was more amazing then the next and felt as if my work is nothing compared to the amazing accomplishments these women have achieved. I was so honored to be included in such exemplary company and so happy to have met some new friends. I get so wrapped up in the day to day battle with SMA, that you dont realize so many people are fighting a fight, maybe not SMA … [Read more...]

“Hope for Charleston” Spinal Muscular Atrophy Research Fundraiser and Bake Sale

Check out this amazing event Saturday, February 19 · 12:00pm - 5:00pm at Flying Colors Comics and Other Cool Stuff 2980 Treat Blvd Concord, CA...yummy treats, healthy options, and some comic book giveaways too! This event is being given in honor of Charleston (Cash) Goeppart. Cash is the son to Concord natives Ashley and Cameron, two amazing SMA Parents who are not only devoted to Cash but to helping in the fight to CURE SMA!!!!! Please consider attending and supporting this awesome SMA Family, … [Read more...]

Sophia’s is turning 2…. Birthday Giveaway

We are soooo excited for Sophia's Birthday coming up, in 22 days!! We feel so blessed and so grateful that our little miracle is turning 2!!!!! We just want to celebrate all month, and because we feel so blessed we would like to give this giveaway is so much fun, Larkie Lu Bows will be giving away the signature "Sophia's Cure Bow" AND a custom bow of your liking to the winner. How do you enter: 1. Comment under this post 2. Go to Larkie Lu Bows fanpage and leave a comment  … [Read more...]

You buy. They donate. Good causes benefit.

It is that simple. You can help out the cause of your choosing by purchasing goods and services that you were already going to buy. When you shop through our site we donate a percentage of your purchase price to the charity you are supporting. Sophia was diagnosed with Spinal Muscular Atrophy, SMA type I, at 5 weeks of age, after being dismissed by the pediatrician as “just a lazy baby”. SMA is a degenerative terminal disease, there is no cure and there is no proven … [Read more...]

Get Every SMA Kid an iPad

We are launching an incredible, amazing, spectacular campaign! Get every SMA KID an Ipad! We have all seen how amazing Ipad's are for our SMA Kids. Here is how it works anyone who sells anything on ebay can choose what portion of the proceeds go to our EBAY Store Sophia's Cure Foundation. Every single dollar that is raised through our EBAY Store will go towards purchasing IPAD's for our kiddos. That's right every single penny!  Let's all do a Virtual Garage sale and get rid of some clutter … [Read more...]

Give the Gift of Life – Shop GoodSearch

Now you can do all internet shopping and raise money for Sophia's Cure Foundation. Just go to GoodShop and search for your favorite stores, shop away and a portion will go to Sophia's Cure Foundation. Such and easy and Free way to Help Cure SMA. Get Involved! … [Read more...]

Join Team SMA to fight for a Cure

Run, walk, bike, hike, or participate in any other type of event and dedicate your efforts to SMA research. From a hometown 5K to an international triathlon, the choice of date, location and distance is up to you! Sophia's Cure Foundation is a nonprofit 501(c)(3) public charity, which was formed shortly after our daughter was diagnosed with Spinal Muscular Atrophy. The foundation was created to assist in funding for clinical research towards finding a cure for SMA and to offer support to … [Read more...]

SMA A-WEAR-NESS Jewelry in partnership with Sophia’s Cure Foundation

A good portion of each SMA A-wear-ness item purchased will go to Sophia's Cure Foundation to assist in funding Dr. Brian Kaspar’s gene therapy research. If you'd like to make a donation directly to Sophia's Cure Foundation, please click here. Any donations are greatly appreciated and go directly to Dr. Kaspar's SMA research! Huge breakthroughs are happening in finding a cure! Get Involved! Spinal Muscular Atrophy (SMA) is the #1 GENETIC KILLER of children under the age of two. While there is … [Read more...]

Larkie Lu Bows – Featuring the Sophia’s Cure Bow

We are so excited that Larkie Lu Bows has chosen Sophia's Cure Foundation as the SMA Charity they will be donating to! Larkie Lu Bows has teamed up with the Sophia’s Cure Foundation and created a bow especially for us.  They will be donating 50% of all sales from the Sophia’s Cure bow to the foundation for research into finding a treatment or cure for Spinal Muscular Atrophy. Get Involved! … [Read more...]

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