Archives for November 2010

Amazing Night at The Calhoun High School Talent Show!

The other night we received a phone call from Lauren Rosen. Lauren Rosen is the mom of Robbie Rosen. Many if not all of our followers know about Robbie. The entire Rosen family has become very near and dear to our family. Mrs. Rosen and I were talking on the phone and said she had a surprise... A surprise?????????? What more could this family have done I wondered. They have already done so much!!!! I am forever grateful for their efforts and their friendship. Well Mrs. Rosen says" There is a … [Read more...]

Prendiz Family’s Charity Fundraising SMA Gala in California!

Since we have launched our SMA Kids campaign we have literally been overwhelmed with so many upcoming fundraisers that are currently in the works. It has been amazing to see how many families believe in our mission and the momentum is spreading. It would be easy to focus on the past but we prefer to focus on the future! And the future looks bright! We have been approached by at least 5 separate families who want to fundraise in honor of their children all from the Sunny state of California! One … [Read more...]

Long Island Fortune 52 Honors Catherine!

I want to first start this post by asking for prayers for Sophia's friend Mary Nelson. Mary has Type 1 SMA just like Sophia and is currently in the Picu having seizures and is unresponsive. Please keep Mary in your thoughts and prayers. Two weeks ago I was on the construction site and received a phone call from a number I did not recognize. Usually I would just ignore the call and continue on with work. On this day for some reason I decided to answer. It was a woman by the name of Beverly … [Read more...]

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