Archives for September 2010

Where have we been

I cannot believe it has been a few months since I have updated Our life with Sophia and SMA....well its all for a Great reason, On Agust 5th 2010 our son Jackson Vincent came into the world....we are absolutely in love, and so happy that Sophia has a little brother...Jackson is SMA free, which means he is not even a carrier for the disease.....and a part of me is happy he will never have to worry about this awful disease. Sophia NOW loves her little fiesty brother, at first I believe there was … [Read more...]

Spinal muscular atrophy research team receives Pepsi Refresh funds from Sophia’s Cure Foundation

Nationwide Children's Hospital receives $250,000 grant for SMA research Brian Kaspar, PhD, principal investigator in the Center for Gene Therapy at The Research Institute at Nationwide Children's Hospital, along with a team of Spinal Muscular Atrophy (SMA) researchers and clinicians, recently received a $250,000 grant for SMA research and clinic development from Sophia's Cure Foundation via the Pepsi Refresh Project. Spinal Muscular Atrophy (SMA) is a group of inherited debilitating … [Read more...]

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