Archives for 2010

January 18, 2011 – Prendiz Family’s Fundraising SMA Gala in LA, California

Please dont forget to check out this amazing event, or consider being a sponsor, The Prendiz family is working on a fundraising charity Gala to help Cure SMA. Please click here to learn more about The Gala and the Prendiz Family and their journey with SMA. When we stand together and share information, our voices will be heard loud and clear. Miracles do Happen, Lets make one!!!!!! Featured images of Hannah and her mommy, Jessica. For more info about Hannah or the Gala, please … [Read more...]

What’s Sophia been up to

Making Christmas cookies....thats right, I made Christmas cookies with my little girl. I know it doesnt sound like alot, but ever since having Sophia I had all these dreams of doing so many things with her, and when SMA entered our lives I felt all my dreams were stollen.....well everyday Sophia has taught me that she can do anything.....and Vinny and I learn everyday how to adapt the world for Sophia. I loved every second of it, watching her watch all the ingredients go into the bowl, pushing … [Read more...]

Christmas magic

I love love the holidays, ever since I was a little girl I loved every part about it. My whole life I could not wait to have children so I could teach them all the magic about Christmas. My mother was a wonderful "teacher" she always made the holidays beautiful, and let me tell you, you don't need money to do so......we were so poor growing up, I remember one year we couldn't even afford a tree, but that didn't stop my mother she took all the christmas cards that people sent us and taped them on … [Read more...]

Happy Holiday’s

Its the Holiday season and we are super excited to celebrate Jackson's first christmas and even more thrilled to celebrate Sophia's second!!!! So much has been going on lately I think we have been feeling a bit overwhelmed and certain events in the past few weeks have left us extremely stressed out!!!!! But we will get through.......we have been working so hard non stop and we just need a little break, I was so happy last saturday to meet up with another amazing SMA Mom, It is so comforting to … [Read more...]

December 12, 2010 – Running for Getty Owl

We are also so Happy to be teaming up with Rici Reid, an amazing mom who read about another SMA Kid Baby Getty. Rici has decided to run a half marathon in honor of sweet Getty and help raise research dollars for Sophia's Cure Foundation, please consider sponsoring her here. … [Read more...]

Amazing Night at The Calhoun High School Talent Show!

The other night we received a phone call from Lauren Rosen. Lauren Rosen is the mom of Robbie Rosen. Many if not all of our followers know about Robbie. The entire Rosen family has become very near and dear to our family. Mrs. Rosen and I were talking on the phone and said she had a surprise... A surprise?????????? What more could this family have done I wondered. They have already done so much!!!! I am forever grateful for their efforts and their friendship. Well Mrs. Rosen says" There is a … [Read more...]

Prendiz Family’s Charity Fundraising SMA Gala in California!

Since we have launched our SMA Kids campaign we have literally been overwhelmed with so many upcoming fundraisers that are currently in the works. It has been amazing to see how many families believe in our mission and the momentum is spreading. It would be easy to focus on the past but we prefer to focus on the future! And the future looks bright! We have been approached by at least 5 separate families who want to fundraise in honor of their children all from the Sunny state of California! One … [Read more...]

Long Island Fortune 52 Honors Catherine!

I want to first start this post by asking for prayers for Sophia's friend Mary Nelson. Mary has Type 1 SMA just like Sophia and is currently in the Picu having seizures and is unresponsive. Please keep Mary in your thoughts and prayers. Two weeks ago I was on the construction site and received a phone call from a number I did not recognize. Usually I would just ignore the call and continue on with work. On this day for some reason I decided to answer. It was a woman by the name of Beverly … [Read more...]

SMA Gene Therapy

As you all know most of our fundraising lately has been going to the amazing Gene Therapy program for SMA coming out of OSU/Nationwides childrens hospital.....we were so honored when one of the researchers, Dr. Brian Kasper asked to meet our family and especially Sophia. Dr. Kasper was in NY last week for a conference at Columbia and was so generous to spend some time with us on thursday. He was also very gracious to agree to do a video recorded Q/A session.....we asked the SMA community to … [Read more...]

SMA Parents

I said it once I will say it again, I hate SMA, I hate what it does to my daughter, but I love Sophia with all my heart, and the SMA Parents and families I have met along this journey are some of the most courageous, understanding, patient and kind people I have ever met. I love every single person in my SMA Family and I am proud to be taking this journey with you all... Today I was having a blah day, its rainy here in NY which doesnt help my yucky mood, but surpisingly I got a knock at the … [Read more...]

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