Archives for November 2009

Stem Cell Research article in Esquire

Everyone this is it! This is what we have been funding. He has made it to Esquire! We have played a huge part in speeding up this trial. Every dollar we have raised has been going to this trial. The more we raise the faster it starts. Thank you for your continued support. Hopefully very soon we can start saving babies! EsquireMagazineArticle … [Read more...]

Oh what a beautiful night

The Cure SMA New York Gala was a huge success!!! Not only did we receive a surprise check from OdysseyRe for $50,000 but more importantly we brought together so many SMA families for a fun filled night. I am so proud of Kiley and Dylans sweet dreams foundation and Sophias Cure for pulling off such an amazing event. We were so honored that Rania Nasis came all the way from UC Irvine to speak about the Stem Cell program they are developing for SMA, and even more proud of my dear friend Dorothy … [Read more...]

Wedding Time

A wonderful woman, Amber contacted us after reading about Sophia, she wanted to make a donation to Sophias Cure in lieu of having favors at her wedding, We gave her Sophias Cure bracelets and she placed them at all the seats of her guests and wrote something about our little angel and her struggles, we cannot thank Amber enough for opening up her heart to our angel, please take a look at the beautiful pics!!!! … [Read more...]

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