First child with Spinal Muscular Atrophy has been injected with AAV9 Gene Therapy..

We are proud to announce that the first child in the Gene Therapy Program was injected just over 30 days… read more

First child with Spinal Muscular Atrophy has been injected with AAV9 Gene Therapy.. First child with Spinal Muscular Atrophy has been injected with AAV9 Gene Therapy..

A Day For Avery…….

Three short months ago, the Skeeters were blessed with the opportunity to meet baby Avery Lynn Canahuati,… read more

A Day For Avery……. A Day For Avery.......

Amazon Smile and Sophia’s Cure Foundation team up to beat SMA!!!

We are excited to partner with AMAZON SMILE....now if you shop through AMAZON SMILE 5% of your purchase… read more

Amazon Smile and Sophia’s Cure Foundation team up to beat SMA!!! Amazon Smile and Sophia's Cure Foundation team up to beat SMA!!!

A Night For a Cure

August is SMA AWARENESS MONTH.....Please join us for a cocktail fundraising party on Thursday August… read more

A Night For a Cure A Night For a Cure

Thank you for believing in us and SOPHIA!!!

We are very proud to announce enrollment for the Gene Therapy Clinical Trial is now OPEN. Phase I Clinical… read more

Thank you for believing in us and SOPHIA!!! Thank you for believing in us and SOPHIA!!!

Golf for a Cure in honor of Nathan Banjany!!

SCF is so excited about the 2nd annual Golf Event in honor of Nathan Banjany, hosted by GMM Consulting,… read more

Golf for a Cure in honor of Nathan Banjany!! Golf for a Cure in honor of Nathan Banjany!!

Limited……..Only by your Imagination…….Truly Living with Spinal Muscular Atrophy….

It has really been a long time since I sat behind a laptop to write a blog entry...........................… read more

Limited……..Only by your Imagination…….Truly Living with Spinal Muscular Atrophy…. Limited........Only by your Imagination.......Truly Living with Spinal Muscular Atrophy....
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